![His skin is as fragile as the wings of a butterfly': Mom's heartbreaking account of son's rare skin condition – Love What Matters His skin is as fragile as the wings of a butterfly': Mom's heartbreaking account of son's rare skin condition – Love What Matters](https://lwm-a2.azureedge.net/uploads/2018/04/rare_skin_condition.jpg)
His skin is as fragile as the wings of a butterfly': Mom's heartbreaking account of son's rare skin condition – Love What Matters
![My brother came to me in a dream last night and told me he was in heaven. He isn't in pain anymore.': Mom of 2 children with rare skin condition loses youngest My brother came to me in a dream last night and told me he was in heaven. He isn't in pain anymore.': Mom of 2 children with rare skin condition loses youngest](https://lwm-a2.azureedge.net/uploads/2020/01/melissa_jaquez_genetic6-900x1087.jpg)
My brother came to me in a dream last night and told me he was in heaven. He isn't in pain anymore.': Mom of 2 children with rare skin condition loses youngest
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